Sunday, December 17, 2006

The Chronicle - Santa Run



It’s Saturday morning in a quiet Cromwell neighborhood when suddenly, the sound of fire engine sirens rings through the street. Parents and children come running out of their houses but there’s no fire or smoke to be seen. The children are jumping up and down with excitement and the adults are outside with their digital cameras. A fire engine pulls up to the house and Santa Claus waves from atop the engine. What’s going on here? It’s that time of year again – time for the Cromwell Fire Department’s Annual Santa Run, which collects donations for Cromwell Human Services, and this writer was fortunate enough to come along for the ride. I arrived at the Department at 9:30 am to witness all the pre-Santa planning. After their morning coffee, the fire department employees get to serious work, which includes decorating the trucks, loading the huge boxes of candy canes that will be distributed during the day onto the trucks, designating Santa roles and handing out the routes which the engines will follow. Some of the engines also need to be on-call for any emergencies that should arise during the Run. Luckily, the weather was clear and uncharacteristically warm, unlike last year, when the Department had to contend with snowy road conditions, in addition to the ensuring that the Santa Run could still take place. In the staff truck with Assistant Chief Donald Quick, I was able to get a good feel of the hectic pace of this special day. It involved a lot of driving around, looking for houses that may have been missed and unloading the fire trucks to make room for more donations (after only an hour, the staff truck was already filled to the brim), not to mention responding to the little incidents that occur during the day. After dropping off some toys at the Coles Road station, Quick had to stop at Town Hall to re-set their security alarm and then to catch up with the Santa and the engines again. And if this wasn’t enough, after the Santa Run (which lasted from 11 am until 3 pm), the Department is off to deliver a Christmas tree and presents to a needy family for their Adopt-a-Family program, followed by a children’s Christmas party before they could relax at another party for the adults. Besides the cheer that Santa in his upgraded sleigh brought to the local kids, all of whom were elated at the sight of him in front of their house, the Santa Run also showcased the generosity of the Cromwell community. Residents who wouldn’t be around for the Run dropped their gifts off. Those residents who missed the sirens’ warning sounds announcing their presence would call the station to arrange for another Santa drive-by. This year, the support of the Santa Run grew so much that two places warranted special stops because of the amount of donations collected. The Rook Retirement Community, which had two large tables filled with toys and Rookies Sports Bar and Grille. After one of Rookies’ owners, Annette Polizonis, read about the Run in last month’s Chronicle, she, along with co-owners Bill Fox, Tim Howley and Jeff Boynton, wanted to do something to help. Polizonis realized that with Rookies’ sixty-odd employees, they had the ability to make a significant donation. “Everyone brought something in,” she said. “[The employees] definitely shined.” With each employee bringing two gifts a piece, Rookies was able to collect an impressive 120 donations, helping to make this year’s Santa Run the most successful yet.

Sunday, November 19, 2006

The Chronicle - Culture Shock

"There is nothing in life so cruel as being blind in Granada”

Granada, Spain is a quintessential Andalucian town with its pueblos blancos, those quaint, white-washed houses climbing up the hillsides, and the obligatory castle - no city in Andalucia is complete without one. Granada’s just happens to be Spain’s biggest tourist attraction, the legendary and breath-taking old palace of the Moors, the Alhambra. When I decided to quit my steady job at a mortgage company for adventure, excitement and teaching English in Europe, I unquestionably chose Granada. I had had just a taste of Granada the previous year while on a whirlwind tour of Spain. Determined to see as much of the south as possible, we had rushed through Malaga, Benalmadena, Seville, and Granada in five days. We had only enough time in Granada for a quick tour of the Alhambra and whatever we could see out the window on the bus ride between the Alhambra and the bus station. Apart from the palace and gardens, which was forever burned in my memory (and in 200 + pictures on my digital camera) as a spectacularly beautiful place especially considering it was still the winter, I only remember a sense of loss at everything else I was missing through the bus window. It was obvious that I would have to return to the city one day. I arrived for my TEFL (Teaching English as a Foreign Language) course in February and was taken to my apartment for the next four weeks. After trudging up a seemingly endless hill, I arrived at a small white house that was only a few hundred feet from one of the gates of the Alhambra. From my balcony, I could see one of its towers as well as a stunning view of the Cathedral. Although I was a little apprehensive at living alone with my Spanish landlady (most of the other students had shared apartments), the location was certainly a consolation. Every morning while brushing my teeth, I could look out at one of the wonders of the world. It was definitely an improvement over the old 9 to 5 grind. Before leaving Connecticut, I often spoke to my co-workers about my plans in Spain. They were stories filled with Mediterranean beaches, tapas bars and siestas. I showed them pictures of my time there – views of the pueblos blancos from the tower of the Alhambra, the peaceful courtyards filled with intricate Islamic tiles and fountains, and the sunsets over the Mediterranean. Every day on the job, we experienced the “3 o’clock slump” when we would need a coffee break or quick walk outside to wake up. After years of struggling through this time of the day, I was looking forward to siesta the most. The idea of a country that institutionalized the mid-afternoon nap couldn’t be anymore appealing. Of course, the novelty can only last so long. My time on the TEFL course was stressful and I had limited amounts of time for beaches and siestas. Lesson planning was usually three hours a day, in addition to daily classes on various teaching methodologies. My apartment was a ten-minute walk from the school, so with only an hour-long break during the day, it seemed pointless to walk home, sleep for thirty minutes and run back. So siestas were few and far between. Granada, although certainly warmer than Connecticut is in February, was rainy and didn’t inspire much desire to take an hour long bus ride to the coast. Spanish homes also aren’t equipped with the kind of heating that we are used to in the States. Because it doesn’t get very cold, most Spaniards in the south will have limited, if any, heat at all. The heat in my apartment was regulated by my landlady. Every couple of days, she would come into my room and ask kindly, “Tienes frio?” When I responded with a yes, hoping she would turn on the as-yet-unseen-and-unfelt heating system, she would open a large trunk and hand me an extra blanket. As someone who has lived in the Northeast United States for all of her life, the cold wasn’t unbearable as much as a nuisance. I had expected temperatures in the 60s but in reality, it never made it much higher than the 50s. But of course, 50 degree weather in February in Connecticut is considered a heat wave! No, the hardest thing with the weather was washing clothes. Although I had been to Europe several times, I was entirely unprepared for this reality. In contrast to the United States, almost every Spanish house or apartment is equipped with its own washing machine. However, from what I could see, there were no more than two dryers in all of southern Spain. In the hot, sunny summers of Andalucia, it is easy to see why they are unneeded. But in the damp cold of the winter months, it becomes much more problematic. I had socks that hung up in my room for days without ever getting really dry. And there is nothing worse than waking up cold, putting on a not-entirely-dry pair of underwear and venturing outside into the rain. My American classmates and I would commiserate and talk longingly of putting on a nice warm pair of socks, fresh out of the dryer. If you needed to buy laundry detergent or anything else, the siesta made this very difficult. On my walk to the school every day, I passed some stores that were literally never open. I don’t know if they went out of business and no one had bothered to take down the signs, or if it was just that I was never there at the right time of day. Siesta could last from anytime between 1:00 and 5:30. With our busy class and teaching schedules, the simple act of buying groceries became almost impossible. We had a break between 1:30 and 3:00 but we couldn’t go during that time since the stores were closed. We finished teaching at 10:00 most nights, which was after the stores had closed for the day. As for the weekends, you could get lucky on a Saturday but it became impossible on a Sunday. Everything in the city was closed, except for the McDonalds and kebab stands. I had never fully appreciated American capitalism and convenience as much as I did on those days. These are small inconveniences that one can deal with and make allowances for. As I brushed my teeth and washed my face every morning while gazing at the Alhambra, the damp socks I was wearing bothered me just a little less. I missed home but was still generally happy until about halfway through the course. One Friday, while in the beautiful Plaza Nueva, just a five minute walk from my apartment, my wallet was stolen. I didn’t even know it had happened until I went for a coffee and noticed that my purse seemed awfully light. I was very close with the other students on the course and they did everything they could to help. A few offered to go back to Plaza Nueva to see if they could find it, while others stayed with me and tried to calm me down. When it became apparent that it was pick pocketed, we immediately went to the police office. My classmate Amy, proficient in Spanish, began speaking to an officer just outside of the building. My Spanish was shaky in the best circumstances and in my panicked state, I couldn’t understand a word that was said. When I asked what he had said, she said, “Well, um, actually he said he can’t do anything because the station is closed for siesta.” I was distraught. Having gone to college just outside New York City and being so accustomed to 24-hour services, this was completely shocking. I began ranting everyone that if they felt the urge to commit a crime, now was the time to do it since the police were closed. It was a terrible day, one of the worst I’ve ever experienced. Yet I still consider this month in Granada as one of the best times of my life. The people I met on the course and in the English classes, the teaching experience I gained and the travels in and around Granada were simply unforgettable. My decision to go abroad was undoubtedly one of the best choices I had ever made. However, I had arranged to go home for a few weeks before I began working as a teacher in Madrid to visit family and friends. I couldn’t wait to do a load of laundry and then put my clothes dryer. I had dreams about walking through the 24-hour Super Wal-Mart on a Sunday afternoon, which filled me with happiness. When I finally did make it home, one of my first orders of business was reclaiming my identity after the stolen wallet. I needed to hit the Social Security office for a replacement card, the CCSU campus for a new student ID card and most importantly, the DMV to reissue my driver’s license. As I drove in my car, elated at being back home in the land of conveniences and home of normal opening hours, I pulled up to the DMV office in New Britain. The parking lot was strangely empty. I got out of the car and went up to the door and remembered what day it was and for a moment, felt like I was back in Spain. The sign in the window said “Closed on Mondays.”

Saturday, January 14, 2006

The Chronicle - Little Hearts



Jeffrey Cameron was only 10 days old when he was diagnosed with Hypoplastic Left Heart Syndrome (“HLHS”), a type of congenital heart defect (“CHD”). Their doctor gave the Cameron family three options - a heart transplant, a series of open-heart surgeries or what is known as “comfort care.” For Jeffrey’s mother, Lenore, this last option was essentially “do nothing and let your child die.” Based on the doctor’s discouraging prognosis for their son, the Camerons brought their son home from the hospital for comfort care. “We were under the impression after hearing from the doctors that even if we gave him a chance with the staged surgery, his chances of surviving all of them weren't good and if he did, he wouldn't have a quality of life.” Lenore explained, “We were given little to no hope of him making it.” One out of every 100 children is born with a congenital heart defect, making this condition the number one birth defect in the country. Despite the apparent regularity of this condition, Lenore was largely unsuccessful in her attempts to find local support groups for herself and others with CHD children. So Lenore decided to organize an outing at a Chuck E. Cheese restaurant in Massachusetts with other families she had found. “It met my needs,” Lenore said, “and afterwards I thought, we need something. There isn’t anything else out there. So Little Hearts was born in January 1998.” Little Hearts, Inc. was a way for Lenore to offer support and hope to other parents in her situation. Founded in Cromwell, the organization currently has over 1,200 members across the country and the world. Families across the globe are able to connect and find support for their CHD children through their web site, www.littlehearts.org. The site offers both services and resources for these parents. “We do have a lot of information on our web site.” Lenore said. “What’s on there is really just to share the hope with others. We have families in other countries today that have members; we have an email support group. We have a mom from Kuwait. We have a mom from Ireland. Recently, we just got a mom from India. And so they can subscribe to our email support group. If they have a question about their kid, they can just post it. It’s not like going to a meeting. You can just go on the computer and it’s just so much easier.” In addition to the email group, Little Hearts offers a variety of support services and special events to educate others and raise awareness about CHDs. “Parent matching” allows mothers and fathers to connect with a network of other parents whose child has the same or a similar heart defect. Conversely, the “Parents Helping Parents” program allows an “experienced” parent to offer support to others whose child is currently undergoing surgery or treatment. “What works for some parents,” Lenore related, “is that we get membership forms from parents’ older children who don’t need the support but they’re sending in a membership form because they want to help another member. So all they do is check off on the membership form ‘Give out my name for a match’ and maybe that’s all that they want. And so it’s really helpful.” Little Hearts also holds an annual picnic the first Sunday of June, where the kids and their families can enjoy kayaking, moonwalks, or face-painting and balloon-making clowns. The 2005 picnic was held at Winding Trails in Farmington. “Last year there were something like 120 families and that’s about 300 or 400 people.” Lenore stated, “We do piƱatas, the kids just love that. The kids just get so excited. They can’t wait to get some of the candy. We have this one little boy, who I think said it best. He comes from New York and he said to his parents, ‘Mom, I’m so glad I was born with a heart defect because if I wasn’t I couldn’t have come to this picnic.’ And this kid went through a lot. He almost didn’t make it. ” Another annual tradition is a writing campaign to the governor to request that February 14 be declared Congenital Heart Defect Awareness Day. “Parents, when they go through this,” Lenore explained, “they want to do something to help and this is one way of just sending in a letter. They get a proclamation [from the governor]. I just had one mom from Maine who wants to get the proclamation. She works at a hospital and she wants to set up a display of CHD day. She can display the proclamation and just bring awareness to congenital heart defects because a lot of people aren’t aware of it. You don’t become aware of these things until it happens to you.” Most kinds of CHDs can be detected in a pre-natal exam through an echocardiogram (a type of ultrasound that takes pictures of the heart using sound waves). A specialist, rather than the obstetrician, typically performs this procedure. Although the defects can be detected prior to birth, the causes of the condition are widely unknown. Certain types of medication including isotretinoin and lithium, as well the obvious alcohol and drug abuse, can possibly increase the chances of a CHD. However, a woman diagnosed with a viral infection such as rubella also has an augmented risk for her unborn child. Scientists have isolated several gene mutations that may also be responsible for CHDs. There are over 35 kinds of CHD, most of which can now be treated or cured by surgery or medical devices such as pacemakers. The medical technology of the last 25 years has allowed a half a million children diagnosed with CHD in this country to live into their adult years. Lenore’s son Jeffrey is now a happy and healthy 9 year-old boy. The Camerons, after trying comfort care for 6 days, ultimately decided to get a second opinion. They were told that the three-stage heart surgery had a 75% chance of being successful. “He’s had all three surgeries.” Lenore stated. “In third grade, they start the one mile run and he actually looks forward to it. He did the one mile run in 4th grade and came in 36th out of 47 kids.” While her son may not be actively involved in sports, that’s okay with both Lenore and Jeffrey. “His brother does football, soccer, and every time he signs up, I ask Jeff if he wants to and he says no. But he eventually went and told me, ‘I don’t think I can.’ So that was a heartbreak. But it doesn’t bother him and he has other interests. Life isn’t about sports.” Although many CHD kids can still experience weakened stamina and may become winded more so than others without their condition, the future seems bright for kids born with these heart defects. Of course, there are still instances where the CHD cannot be treated. “It’s a heartbreak when we lose kids. There’s a little boy in that poster up there,” Lenore related, pointing at a poster on the wall of her new Cromwell office, “and it’s just like, how did that happen? Fortunately, it’s not common. They usually do well, if they went through all three surgeries. They usually do well for HLHS. Where we lose the kids is usually following the 1st surgery. But they’re getting better at what they do out there, that’s the thing. For example, the oldest [person] that has what Jeffrey has is only probably 22, so we don’t know what their adult life will be like. So it’s a wait and see. You just see how the others do. But we also don’t know what the future brings for our heart-healthy kids, so that’s the way I look at it. You have to otherwise you go crazy.” Donations to Little Hearts can be mailed to Little Hearts, Inc., P.O. Box 171, Cromwell, CT 06416 or made on their web site http://www.littlehearts.org.